On our Instagram we have been allowing people to share their questions with the Epilepsy Positivity community, to gain answers from people with lived experience.
Building upon this, this page aims to create a more organised space for people affected by epilepsy to discuss their experiences and ask each other questions. We asked Instagram users in the Epilepsy Positivity community the broad topics they would like to be featured and these were the top six: seizures, treatments, mental health, social life, school/education and memory.
Note: the answers posted by users are most likely from experience and guidance should still be sought from professionals when necessary.
If you have any other ideas for forum topics or would like to provide any feedback (always appreciated) then please email us at
I am posting this mainly out of curiosity for a project that I am doing with my college at the moment. I have epilepsy myself yet personally have not experienced many problems with my memory (thankfully).
Just wondered what sorts of memory problems people are affected by because of their epilepsy (i.e. what types of information are impacted).
Has anyone got any tips for dealing with memory issues in epilepsy? My medications and seizures are making me quite forgetful and as a young adult I'm finding it fairly hard to cope with. Thank you in advance.