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"Seizing positivity over seizures, one brainwave at a time" - patient voice
YOUR STORIES - FULL STORIES SO FAR
Below are a selection of the inspiring stories we have been sent so far from our community. We are so proud to share these blog posts and hear about the experiences of all of the wonderful people who have connected with Epilepsy Positivity.
Whether you are a patient, sibling, parent, carer, friend or have an alternative connection with epilepsy, we would love to hear from you!
If you would like your epilepsy story to be shared please email us at epilepsypositivity@outlook.com
Epilepsy Postivity
Oct 28, 20192 min read
'Moving Over Mountains'
Justin LaPier: "Hello, I’m Justin LaPier, and I’m 23 years old. I was diagnosed with epilepsy in July of 2018, but I’ve been having focal...
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Epilepsy Postivity
Feb 25, 20192 min read
'Epilepsy and My Family'
Mazelle Rozanski: "My name is Mazelle Rozanski. I am 24 and I started having seizures at 6 then at aged 8 I started to have Grand Mal...
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Epilepsy Postivity
Feb 15, 20191 min read
'I Am Strong'
Alexandria Lucas: "My journey of epilepsy... I was 17 when I had my first seizure, I had just had a day out with my boyfriend at the time...
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Epilepsy Postivity
Jan 24, 20192 min read
'Under the Lights'
Miles Levin: "I’m Miles Levin. I’m 23 and I've had epilepsy since I was 5. My independence is very limited and I find freedom in...
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Epilepsy Postivity
Jan 9, 20195 min read
'Her Story'
Marissa Cory: "Hi, my name is Marissa Cory and I have epilepsy and social anxiety. All my life, I’ve had seizures. My mom took me to the...
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Epilepsy Postivity
Oct 14, 20186 min read
'Animum'
Vivian Bettencourt: "My epilepsy journey began at age fifteen. I suffered a traumatic brain injury which would later be diagnosed as the...
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Epilepsy Postivity
Sep 19, 20182 min read
'Never Give Up'
Gabby Salas: "I've been epileptic basically my whole life. It all started because of an ear infection that I had as a toddler. I...
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Epilepsy Postivity
Jun 29, 20185 min read
'Go With Your Gut'
Caoimhe Fleming: "I was diagnosed with Juvenile Myoclonic Epilepsy(JME), along with some visual symptoms which are still unexplained, but...
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Epilepsy Postivity
Jun 22, 20183 min read
'Finding Strength Through The Struggle'
Melissa Hadley: The first time I had a seizure was on the way back to class from a school assembly when I was 7 years old. I fell to the...
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Epilepsy Postivity
Jun 18, 20182 min read
'Epilepsy Has Never Defined Who I Am'
Kirsty Nichols: "I started my theatre nursing degree when I was 18, straight from a levels. In my final year, final placement just before...
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Epilepsy Postivity
Jun 18, 20186 min read
'The Story So Far'
Tom Ryan-Elliot: "So, let’s step back and cover everything that’s happened to me over the past few years. Alongside the Epilepsy Society...
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Epilepsy Postivity
Jun 18, 20184 min read
'My Seizure Heroes!'
Angi Brusatto: "Gabriella, my oldest child, my first diagnosed with absence seizures at 7 years old, and has now become refractory with...
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Epilepsy Postivity
Jun 18, 20183 min read
'For you, I will bear anything, for you bear more than I will ever know'
Morgan Cormick: "My name is Morgan Cormick and my little epilepsy warrior is Daphne. She is now 3 years old. My little angel Daphne...
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Epilepsy Postivity
Jun 18, 20183 min read
'For The Love Of Living'
Tiffany Puza: "Good afternoon, I wanted to share my epilepsy story. Only, it's not my story. It's the story of my dear friend Stephanie...
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Epilepsy Postivity
Jun 18, 20184 min read
'Joy In The Uncomfortable'
Hanna Drollinger: "Growing up, I wasn’t your typical child. In preschool, while all the other kids were playing and learning...
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Epilepsy Postivity
Jun 18, 20182 min read
'Epilepsy Through A Child's Eyes'
Rachel Skaug: "Hi, Below is a summary of my epilepsy story. My name is Rachel Skaug, formerly Rachel Kaalberg, and I used to have...
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Epilepsy Postivity
Jun 18, 20182 min read
'One Word Doesn't Define Me'
Jess McCoy: "I was a healthy 20yr old when four grand mal seizures interrupted my life. My doctors diagnosed me, with epilepsy, a...
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Epilepsy Postivity
Jun 18, 20182 min read
'Seizure Success'
Pippa Simpson: "Epilepsy doesn’t get enough awareness on the day to day, people associate it with flashing lights and nothing else. A...
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Epilepsy Postivity
Jun 18, 20182 min read
'Epilepsy Poem'
Stephanie Vargas: "I was diagnosed with Epilepsy at the age of 12, and it has been such a journey. I began writing as a coping mechanism...
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Epilepsy Postivity
Jun 18, 20183 min read
'Love Will Always Win❤️'
Chants: "I was diagnosed with idiopathic epilepsy and I had my first seizure in Late August 2013 when I was 10 years old. I suffered from...
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Epilepsy Postivity
Jun 18, 20181 min read
'Epilepsy hasn't stopped me living my life'
Katherine Blanchette: "Hello. 8 years ago I had my first seizure, it happened when I was sleeping. my husband said I grunted, rolled out...
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