UK

 

Epilepsy Action: The largest member-led epilepsy organisation in Britain.

 

Vision: ‘We want all people affected by epilepsy to receive the healthcare and support they need and the

public respect, fairness and understanding they deserve.’

Mission: ‘To fight to improve the lives of everyone affected by epilepsy.’

 

Epilepsy Action have a helpline (0808 800 5050) which can be contacted at set times Monday to Saturday which can offer advice and information about epilepsy from trained advisors. They also have an email (helpline@epilepsy.org.uk) and texting (0753 741 0044) service if this is preferable.

 

For connecting with others who have Epilepsy, Epilepsy Action have several local branches and coffee and chat groups, as well as an online forum.

 

Epilepsy Action have lots of additional leaflets, booklets and learning resources too.

 

For further information about the support Epilepsy Action offer, see here: https://www.epilepsy.org.uk/info/support/helpline

 

Epilepsy Scotland: Epilepsy charity based in Scotland.

 

Mission: ‘Epilepsy Scotland works with people living with epilepsy to ensure that their voice is heard.’

 

Epilepsy Scotland have a freephone helpline (0808 800 2200), helpline email (helpline@epilepsyscotland.org.uk) and helpline text (07786 209 501). For full information see here: http://www.epilepsyscotland.org.uk/telephone-text-email-or-social-media/info_20.html

Epilepsy Scotland also have several support groups across Scotland. For further information about a support group near you, see here: http://www.epilepsyscotland.org.uk/support-group-details/info_50.html

 

 

 

Epilepsy Society: UK based charity and provider of epilepsy services.

 

‘Our vision is a full life for everyone affected by epilepsy’. For more on their vision and mission statement,

see here: https://www.epilepsysociety.org.uk/about-epilepsy-society#.XHgXyy2cY6g

 

Epilepsy Society have a helpline (01494 601 400), for more information see here: https://www.epilepsysociety.org.uk/contact-us#.XHju0i2cY6g

 

Epilepsy Society also have plenty of information about finding support from those around you, your healthcare team, others with epilepsy, professional psychological support, practical and financial support and self-management courses. For more information, see here: https://www.epilepsysociety.org.uk/finding-support#.XHjvxC2cY6h

 

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SUDEP Action: UK charity specialised in supporting and involving people bereaved by epilepsy.

 

‘Making every epilepsy death count.’

 

‘At SUDEP Action, we focus our efforts on the priorities that bereaved families tell us are important: To prevent deaths; to be supported and to be involved.’

 

Support line: 01235 772852. For more information, see here: https://sudep.org/contact-us

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Young Epilepsy: UK charity dedicated to creating better lives for children and young people

with epilepsy and related conditions.

 

See vision, mission and values here: https://www.youngepilepsy.org.uk/about-us/what-we-do/our-vision-mission-and-values.html

 

Young Epilepsy have a helpline (01342 831342) which is open Monday to Friday 9am-1pm. They also have an email helpline (helpline@youngepilepsy.org.uk).

 

Young Epilepsy provides a range of support and information for parents, children, young people and training for professionals.

 

For more information about Young Epilepsy, visit their website here: https://www.youngepilepsy.org.uk​