FORUM


On our Instagram we have been allowing people to share their questions with the Epilepsy Positivity community, to gain answers from people with lived experience.

Building upon this, this page aims to create a more organised space for people affected by epilepsy to discuss their experiences and ask each other questions. We asked Instagram users in the Epilepsy Positivity community the broad topics they would like to be featured and these were the top six: seizures, treatments, mental health, social life, school/education and memory. 

 

Note: the answers posted by users are most likely from experience and guidance should still be sought from professionals when necessary.  

If you have any other ideas for forum topics or would like to provide any feedback (always appreciated) then please email us at epilepsypositivity@outlook.com
 

Jun 20, 2018

Anxiety, Depression, and Lots of Sleep

1 comment

I was diagnosed with Juvanile Epilepsy almost four to five years ago and havent had a seziure sense. However, I have come to the assumption that my medications (Keppra and Zarotin) have played a role in being severly fatigued and extremly anxious.

I have mentioned this to my *fill in* neurologist. However, nobody seems to want to take action on this. If anyone out there has any suggestions please let me know. Stay Strong. đź’‹

Jun 20, 2018

Hello!

 

Yes, sometimes AEDs can impact mental health as a side effect, especially if you noticed this after you went on the medication this may be the case. The stress and impact of having seizures may also contribute.

 

If you feel the person you have spoken to so far hasn't listened and it is causing you genuine distress maybe seek a second opinion or go to your GP?

New Posts
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