On our Instagram we have been allowing people to share their questions with the Epilepsy Positivity community, to gain answers from people with lived experience.

Building upon this, this page aims to create a more organised space for people affected by epilepsy to discuss their experiences and ask each other questions. We asked Instagram users in the Epilepsy Positivity community the broad topics they would like to be featured and these were the top six: seizures, treatments, mental health, social life, school/education and memory. 


Note: the answers posted by users are most likely from experience and guidance should still be sought from professionals when necessary.  

If you have any other ideas for forum topics or would like to provide any feedback (always appreciated) then please email us at

Jun 20, 2018

It Gets Better.


After being diagnosed for little over a year my parents made it cruical for the school to be aware of my epilepsy. However, some teachers didn’t believe me.

One day during lectures my science teacher’s smart board started shaking causing me to feel sick. These were a few signs that my neurologist made me aware of. I then made my science teacher aware of the issue. However, she thought that I why lying, so she moved me to the VERY FRONT. In front of everyone. Where I sat I could see every. single. pixel. shaking.

Needless to say I felt like crying.

After that day. My family complained to the school. The teacher got a new smartboard.. and realized that I wasnt a bad kid when I said ”I need to go to the office.“