On our Instagram we have been allowing people to share their questions with the Epilepsy Positivity community, to gain answers from people with lived experience.

Building upon this, this page aims to create a more organised space for people affected by epilepsy to discuss their experiences and ask each other questions. We asked Instagram users in the Epilepsy Positivity community the broad topics they would like to be featured and these were the top six: seizures, treatments, mental health, social life, school/education and memory. 


Note: the answers posted by users are most likely from experience and guidance should still be sought from professionals when necessary.  

If you have any other ideas for forum topics or would like to provide any feedback (always appreciated) then please email us at

Jun 19, 2018

Movie Trigger


Has anyone been to see thenew Incredibles 2 movie yet? If so, were the scenes triggers for your seizures?

i saw the movie Thursday night, and halfway through the movie i had a grand mal seizure. Over the next few days, theaters put up Epilepsy warnings....i just wish they had them up sooner

Jun 20, 2018



I haven't seen the movie myself but I have heard that there are quite a few scenes with flashing lights and then one scene in particular with one minute straight of flashing/strobe lighting. If you are photosensitive then this may be related to your seizure. Yes, I wish Disney had done this sooner, hopefully won't happen again in the future!

Jun 20, 2018

Yes I am....however we didn’t know this when we went to see the movie 😕

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